I have taken a number of interventions, but as the clock is against me I will now press on and try to address as many of those issues as possible, bearing in mind that there will be a follow-up meeting and, as always, I will write to those Members whose particular concerns I do not address in my few remaining minutes. I know that there are good examples; colleagues in the Department of Health and Social Care have told me that there are bespoke services for people with fibromyalgia, but we have heard from colleagues today that it is too much of a postcode lottery and that the services are not consistent. Because of my own disability, I come under it, and there is no reason why fibromyalgia cannot also be seen as a disability under it. I do. It is incredibly frustrating. Friend Sir David Amess and everybody else has done, that the hon. My hon. Members of all parties have said that fibromyalgia can be difficult to diagnose, because the nature of the conditions fluctuates and symptoms often vary. It’s not like me to feel like giving up.”. Friend on securing the debate. There needs to be much more research into the condition alongside consistent treatment pathways, with better training for medical professionals to recognise and then treat the symptoms. Members who have made contributions in a restricted time. Around 25 MPs came along to hear more about what life with fibromyalgia is like, and I was delighted that Adrienne Lakin and Billy Mansell were able to present at that reception and to get across to Members a little bit about the impact that it has had. The site explains: “In order to qualify you must complete a medical assessment which is carried out by an independent doctor once your application has been received and processed. It was not all in my head or character flaws leading to laziness and ill-discipline. Thank you, your feedback has been submitted. Fibromyalgia is not the only such condition. It truly is a vicious circle. Members—some are no longer in the Chamber—made some really valid contributions and interventions. I recall multiple visits to my doctors where I would tell them how exhausted I felt and they told me that I was probably depressed—that being a working mum with three kids was tiring and difficult.”. I am talking about waking up in the morning and being bent over with pain. Today has been a really good opportunity to build on the work that has been done with the petition and have this debate. Order. When Members secure a debate, they always worry about whether they will fill the time, so it is great that this has been one of those debates that could have filled twice as much time. I agree, and I think that that hints at a wider problem in the benefits system assessment regime, which finds it difficult to deal with fluctuating conditions, whether mental health conditions or muscular problems along the lines of fibromyalgia, that are better on some days, or manageable with a huge amount of medication, so that people can get out of the house and may appear better than usual on the assessment day. I think we are also all conscious that, in an era where local government funding has been cut, often charitable and voluntary groups are the ones seeing their funding cut.
William from Netherburn was forced to give up work because of the dramatic changes to his lifestyle. Singer Damien Dempsey and his mum Adrienne Dempsey, who suffers with the condition, attended today’s conference. My wife said: “When I was first diagnosed with fibromyalgia, three years ago, I was actually quite relieved…I knew things were getting worse. We know that there are many difficulties in diagnosing fibromyalgia. "You need a multi pronged approach, you have to subsidise it and you have to finance it. It is because of people like her, and all those people who live a life of darkness and pain, who battle to live, to eat and to turn their lights on, that this debate is important. Many in this country are ignorant about what fibromyalgia is, but it is a condition that many people suffer from. Rico-Villademoros F, Slim M, Calandre EP.
There is not enough time to go through all the symptoms, but we have heard about many of them today. Again, because it is not a rheumatic condition, but far more complicated, we need to find facilities where we can directly address fibromyalgia as a disease, rather than tiptoeing around what it is.
He also struggles to communicate and interact with other people. Unless more research can be done into this condition and more awareness raised among the medical profession and employers, fibromyalgia suffers will continue to be disadvantaged by more than just their symptoms. Obviously, it is easy for the Opposition to criticise the Government, but we have given ample opportunity and made many suggestions about how to review, change and adapt the system. It is unfortunate that limited speaking times have taken over the debate and a lot of people have not been able to say as much as they would have liked. The flares can last for weeks.
With the right understanding, investment and attention, we can do more to ensure that fibromyalgia gets the treatment it deserves. I congratulate my hon. Member for Carmarthen East and Dinefwr (Jonathan Edwards) about the impact on families were also powerful.
Gentleman particularly on that subject.
She could be in my office cheering everyone up with a winning smile and charming personality and literally an hour later, she is wiped out and can’t move for days at a time. The health systems and the social security system that we have within the British state at the moment offer little support.
15th January 2019, 10:17 am, 15th January 2019, 10:38 am, Clearly, my heart went out to that constituent, not simply because she has a difficult life, with days where she cannot get out of bed, eat or even really drink, or simply because she is young, but because I want her to get so much more out of life than a daily battle to do the things that most of us can do, such as showering and basic hygiene care, but that she cannot. I recognise that the context of the debate spans the responsibilities of both the Department for Work and Pensions and the Department of Health and Social Care, and I hope that the Minister will be able to pass on to her counterpart the topics raised in the debate that do not fall within her purview. Registered charity number 279057 VAT number 726 0202 76 Company limited by guarantee. It is a pleasure to serve under your chairmanship, Mr Bailey. Alter it slightly, vary it, create flexibility, but for God’s sake do not have a system that degrades people further when many are already at their lowest point. We have heard today from two hon. Members spoke about the urgent need for more research. Like other hon. I had a constituent who lost two young babies to cancer.
We have heard today that no two people are affected in the same way, so it is important that we have a person-centred approach to providing support, whether that is encouraging employers to be more aware of fibromyalgia and of the reasonable adjustments they need to make to enable people to stay in work, or looking at how the benefit system supports people. Friend Andrea Jenkyns, and to the wonderful husbands who have spoken about wives who are suffering. Does my hon. Members present indicates. Fifteen years ago, it was felt to be very much a condition in someone’s head, but it is much more widely understood today, so we are moving in the right direction. So I was there, with the cameras on me, and I just wanted the ground to open up and swallow me, but I just laughed it off and dealt with it. If you have a long-term condition that’s getting worse, the effect on your day-to-day activities doesn’t have to be substantial as long as it’s likely to become substantial in the future. Friend David Linden that this platform does not do justice to the subject at all. Could your pain be a sign of this condition? "Patients are helped by some understanding of brain neuroscience.". Most fibromyalgic patients have more than one co-morbidity, some several, so making improvements in these, by whatever means, can make a substantial improvement in quality of life. And I couldn’t understand why I felt like this. You have an ‘impairment’ if your physical or mental abilities are reduced in some way compared to most people. That is something I have seen with my own eyes. That is nothing short of admirable. The symptoms include an increased sensitivity to pain, fatigue and difficulties in sleeping. With so many other chronic conditions, the NHS has got so much better at having evidence-based pathways, so that once people have their diagnosis they understand the pathway they are on, and those who are able to support them know what support is available. After her speech I will impose a three-minute time limit. It is a good job that I have kept my sense of humour about this. A lot of that has been done in the past year, in association with voluntary sector organisations that have provided support. Gracely RH, Petzke F, Wolf JM, et al. Many fibromyalgia sufferers have taken pills to help to manage the pain and support them through an ESA assessment, only to discover that the assessment outcome bears little relationship to their daily experience of living with fibromyalgia.
15th January 2019, 10:48 am,
Even to this day—three years on from being elected—I get very nervous when I know that I have to speak in a debate or do a media appearance, because I never know when the fibro-fog is going to come on. Gentleman makes an important point in saying that. There is no specific diagnostic test for fibromyalgia.
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